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Patient and Caregiver Perspectives of Quality of Life in Dementia
An Investigation of the Relationship to Behavioural and Psychological Symptoms in DementiaHurt C.a · Bhattacharyya S.b · Burns A.b · Camus V.d · Liperoti R.g · Marriott A.c · Nobili F.h · Robert P.e · Tsolaki M.i · Vellas B.f · Verhey F.j · Byrne E.J.b
aKing’s College London, Institute of Psychiatry, London, bDivision of Psychiatry, University of Manchester, Manchester, and cKingshill Research Centre, Victoria Hospital, Swindon, UK; dClinique Psychiatrique Universitaire, Centre Hospitalier Régional Universitaire, Tours, eCentre Mémoire de Ressources et de Recherche au CHU, Université de Nice Sophia-Antipolis, Nice, and fCentre Mémoire de Ressources et de Recherche de Toulouse, Toulouse, France; gCentro Medicina dell’Invecchiamento, Università Cattolica del Sacro Cuore, Rome, and hClinical Neurophysiology Service, Department of Internal Medicine, University of Genoa, Genoa, Italy; iMemory and Dementia Centre, Aristotle University of Thessaloniki, Thessaloniki, Greece; jUniversity Hospital of Maastricht, Alzheimer Centre Limburg, Limburg, The Netherlands Corresponding Author
Dr. Catherine Hurt
King’s College London, Institute of Psychiatry
Department of Psychology PO77
De Crespigny Park, London SE5 8AF (UK)
Tel. +44 20 7848 0923, Fax +44 20 7848 5006, E-Mail Catherine.firstname.lastname@example.org
Background/Aims: Behavioural and psychological symptoms have a high prevalence amongst patients with dementia and can be a significant source of distress to both patients and carers. The present study explored the relationships between quality of life and behavioural and psychological symptoms in dementia (BPSD) from both patient and carer perspectives. Contextual factors surrounding the occurrence of BPSD were explored. Methods: Forty-six patients and 116 carers completed questionnaire measures of BPSD and quality of life. Results: BPSD were negatively associated with both patient and carer ratings of patient quality of life. The symptoms related to lower quality of life differed between patient and carer ratings: depression and irritability were found to predict lower carer ratings of quality of life, whilst delusions and apathy indicated lower patient ratings. Carers were found to be poor at identifying antecedents and consequences of BPSD. Conclusions: The presence of BPSD is associated with lower quality of life in dementia. Interventions designed to improve the quality of life for patients should focus on the BPSD specifically associated with the patient’s rating of quality of life. Information regarding the role of contextual factors in behaviour management should be made available to carers.
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