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Vol. 1, No. 3, 1998
Issue release date: March 1999
Section title: Paper
Community Genet 1998;1:169–174
(DOI:10.1159/000016158)

Privacy and Antidiscrimination Issues: Genetics Legislation in the United States

Hodge Jr. J.G.2
Georgetown University Law Center, Washington, D.C., USA

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Article / Publication Details

First-Page Preview
Abstract of Paper

Published online: 3/18/1999
Issue release date: March 1999

Number of Print Pages: 6
Number of Figures: 0
Number of Tables: 0

ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)

For additional information: http://www.karger.com/PHG

Abstract

There are strong incentives for individuals to undergo genetic tests. Genetic information can improve clinical analysis, facilitate medical research, improve the public health, and enhance individual autonomy. However, the rise of genetic information within the health information infrastructure also presents risks to individual privacy and threats in the form of discrimination. While the federal government contemplates genetic privacy legislation, at least 34 states have passed genetic privacy and anti-discrimination legislation. This article examines the scope, intent, and effects of such state legislation. While some state genetics laws are appropriately tailored to the legislators’ intentions, some laws do not properly consider the science of genetic testing or may be over-broad or under-inclusive toward regulating in the interests of preserving individual privacy or prohibiting genetic discrimination by health insurers, employers, and others. Future guidance concerning state genetics legislation may flow from the NIH-funded project, entitled ‘Genetics Legislation: Syntax, Science, and Policy’, that will assist state and federal legislators to legislate effectively concerning genetic privacy.


  

Author Contacts

James G. Hodge, Jr., JD, LLM
PO Box 76305
Washington, DC 20013-6305 (USA)
Tel. +1 202 543 2992, E-Mail hodgej@erols.com

  

Article Information

Number of Print Pages : 6
Number of Figures : 0, Number of Tables : 0, Number of References : 70

  

Publication Details

Community Genetics

Vol. 1, No. 3, Year 1998 (Cover Date: Released March 1999)

Journal Editor: L.P. ten Kate, Amsterdam
ISSN: 1422–2795 (print), 1422–2833 (Online)

For additional information: http://www.karger.com/journals/cmg


Article / Publication Details

First-Page Preview
Abstract of Paper

Published online: 3/18/1999
Issue release date: March 1999

Number of Print Pages: 6
Number of Figures: 0
Number of Tables: 0

ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)

For additional information: http://www.karger.com/PHG


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Drug Dosage: The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in goverment regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any changes in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
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