There are strong incentives for individuals to undergo genetic tests. Genetic information can improve clinical analysis, facilitate medical research, improve the public health, and enhance individual autonomy. However, the rise of genetic information within the health information infrastructure also presents risks to individual privacy and threats in the form of discrimination. While the federal government contemplates genetic privacy legislation, at least 34 states have passed genetic privacy and anti-discrimination legislation. This article examines the scope, intent, and effects of such state legislation. While some state genetics laws are appropriately tailored to the legislators’ intentions, some laws do not properly consider the science of genetic testing or may be over-broad or under-inclusive toward regulating in the interests of preserving individual privacy or prohibiting genetic discrimination by health insurers, employers, and others. Future guidance concerning state genetics legislation may flow from the NIH-funded project, entitled ‘Genetics Legislation: Syntax, Science, and Policy’, that will assist state and federal legislators to legislate effectively concerning genetic privacy.
James G. Hodge, Jr., JD, LLM
PO Box 76305
Washington, DC 20013-6305 (USA)
Tel. +1 202 543 2992, E-Mail firstname.lastname@example.org
Number of Print Pages : 6
Number of Figures : 0, Number of Tables : 0, Number of References : 70
Vol. 1, No. 3, Year 1998 (Cover Date: Released March 1999)
Journal Editor: L.P. ten Kate, Amsterdam
ISSN: 1422–2795 (print), 1422–2833 (Online)
For additional information: http://www.karger.com/journals/cmg
Article / Publication Details
Published online: 3/18/1999
Issue release date: March 1999
Number of Print Pages: 6
Number of Figures: 0
Number of Tables: 0
ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)
For additional information: http://www.karger.com/PHG
Copyright / Drug Dosage
Copyright: All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying, recording, microcopying, or by any information storage and retrieval system, without permission in writing from the publisher or, in the case of photocopying, direct payment of a specified fee to the Copyright Clearance Center.
Drug Dosage: The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in goverment regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any changes in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
Disclaimer: The statements, opinions and data contained in this publication are solely those of the individual authors and contributors and not of the publishers and the editor(s). The appearance of advertisements or/and product references in the publication is not a warranty, endorsement, or approval of the products or services advertised or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements.