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Table of Contents
Vol. 3, No. 2, 2000
Issue release date: February 2001
Section title: Report
Community Genet 2000;3:88–92
(DOI:10.1159/000051110)

HUGO Urges Genetic Benefit-Sharing

Knoppers B.M. · Chadwick R. · Takebe H. · Berg K. · Cantu J.M. · Daar A.S. · Engels E.M. · Kirby M. · Macer D. · Murray T.H. · Qiu R.-Z. · Verma I.C. · Wertz D.C.
 

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Article / Publication Details

First-Page Preview
Abstract of Report

Published online: February 15, 2001
Issue release date: February 2001

Number of Print Pages: 5
Number of Figures: 0
Number of Tables: 0

ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)

For additional information: http://www.karger.com/PHG

Abstract

In view of the fact that for-profit enterprise exceeds public expenditures on genetic research and that benefits from the Human Genome Project may accrue only to rich people in rich nations, the HUGO Ethics Committee discussed the necessity of benefit-sharing. Discussions involved case examples ranging from single-gene to multifactorial disorders and included the difficulties of defining community, especially when multifactorial diseases are involved. The Committee discussed arguments for benefit-sharing, including common heritage, the genome as a common resource, and three types of justice: compensatory, procedural, and distributive. The Committee also discussed the importance of community participation in defining benefit, agreed that companies involved in health have special obligations beyond paying taxes, and recommended they devote 1–3% of net profits to healthcare infrastructure or humanitarian efforts.

© 2001 S. Karger AG, Basel


Article / Publication Details

First-Page Preview
Abstract of Report

Published online: February 15, 2001
Issue release date: February 2001

Number of Print Pages: 5
Number of Figures: 0
Number of Tables: 0

ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)

For additional information: http://www.karger.com/PHG


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