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Table of Contents
Vol. 7, No. 1, 2004
Issue release date: October 2004
Section title: Original Paper
Community Genet 2004;7:44–54
(DOI:10.1159/000080303)

Concerns over Participation in Genetic Research among Malay-Muslims, Chinese and Indians in Singapore: A Focus Group Study

Wong M.L.a · Chia K.S.a · Wee S.a · Chia S.E.a · Lee J.a · Koh W.P.a · Shen H.M.a · Thumboo J.b · Sofjan D.c
aDepartment of Community, Occupational and Family Medicine, Faculty of Medicine (MD3), and bDepartment of Medicine, Faculty of Medicine, National University Hospital, and cDepartment of Political Science, Faculty of Arts and Social Science (AS1), National University of Singapore, Singapore, Singapore

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Article / Publication Details

First-Page Preview
Abstract of Original Paper

Received: July 07, 2003
Accepted: April 02, 2004
Published online: October 13, 2004
Issue release date: October 2004

Number of Print Pages: 11
Number of Figures: 0
Number of Tables: 2

ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)

For additional information: http://www.karger.com/PHG

Abstract

Objective: This study was aimed at exploring and comparing peoples’ concerns over donation of blood specimens for genetic research across three ethnic groups in Singapore: Malay-Muslims, Chinese and Indians. Methods: We conducted 12 focus group sessions among 98 participants with 7–10 in each group. Results: Concerns over donation of blood specimens for genetic research were diverse, with all ethnic groups expressing anxiety about breach of confidentiality, finding out that they have a disease and misuse of research for cloning. Other concerns included fear of pain, blood and needle pricks and misconceptions of adverse health effects such as weight gain from donating blood specimens. Malay-Muslims were generally concerned about the selection process, potential racial discrimination, and religious beliefs regarding blood storage while Chinese and Indians were concerned about giving blood to strangers and being inconvenienced by participating in research. Conclusion: Programmes to promote community participation in genetic research should address the diverse ethnic concerns, design ethnic-sensitive messages and involve the community.

© 2004 S. Karger AG, Basel


Article / Publication Details

First-Page Preview
Abstract of Original Paper

Received: July 07, 2003
Accepted: April 02, 2004
Published online: October 13, 2004
Issue release date: October 2004

Number of Print Pages: 11
Number of Figures: 0
Number of Tables: 2

ISSN: 1662-4246 (Print)
eISSN: 1662-8063 (Online)

For additional information: http://www.karger.com/PHG


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