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Table of Contents
Vol. 83, No. 4, 2011
Issue release date: April 2011
Section title: Original Paper
Digestion 2011;83:283–287
(DOI:10.1159/000320714)

Follow-Up of Children with Celiac Disease – Lost in Translation?

Mozer-Glassberg Y. · Zevit N. · Rosenbach Y. · Hartman C. · Morgenstern S. · Shamir R.
aInstitute of Gastroenterology, Nutrition and Liver Diseases, Schneider Children’s Medical Center of Israel, and bPathology Department, Rabin Medical Center, Petach Tikva, and cSackler Faculty of Medicine, Tel-Aviv University, Tel Aviv, Israel

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Article / Publication Details

First-Page Preview
Abstract of Original Paper

Received: 6/1/2010
Accepted: 8/24/2010
Published online: 2/1/2011

Number of Print Pages: 5
Number of Figures: 1
Number of Tables: 2

ISSN: 0012-2823 (Print)
eISSN: 1421-9867 (Online)

For additional information: http://www.karger.com/DIG

Abstract

Background: Celiac disease (CD) is a prevalent condition with a broad spectrum of presentations requiring a lifelong gluten-free diet (GFD). Our aims were to examine the presentation and adherence to a GFD as well as the adequacy of follow-up of children diagnosed with CD at a tertiary referral center. Methods: A retrospective electronic chart review of pediatric patients suspected of CD (n = 581) who were seen at our institute between January 1999 and December 2008 was performed. Results: 387 children were diagnosed with CD (F/M ratio of 1.54, median age: 6.25 years). Presenting symptoms were iron deficiency anemia (n = 82, 34%), short stature (n = 59, 24.5%) and abdominal pain (n = 59, 24.5%). In 63 patients (16.3%) an associated autoimmune disease was recorded. Only 42.7% of the patients (165/387) had regular out-patient gastroenterologist visits; 22% (86/387) were followed by their primary care physician. Over 35% (136/387) were completely lost to follow-up. Negative serology on follow-up was present in 91% of the CD patients(150/165) followed at our center in comparison to 70% (60/86) in those followed up by their primary physician (p = 0.0002). Conclusions: At least in our referral center, follow-up of children diagnosed with CD is far from satisfactory. Initiatives aimed at improving adherence to regular follow-up are needed as this intervention is associated with a significant increase in patient compliance with a long-term GFD.


Article / Publication Details

First-Page Preview
Abstract of Original Paper

Received: 6/1/2010
Accepted: 8/24/2010
Published online: 2/1/2011

Number of Print Pages: 5
Number of Figures: 1
Number of Tables: 2

ISSN: 0012-2823 (Print)
eISSN: 1421-9867 (Online)

For additional information: http://www.karger.com/DIG


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Drug Dosage: The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in goverment regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any changes in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
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