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Follow-Up of Children with Celiac Disease – Lost in Translation?

Mozer-Glassberg Y.a · Zevit N.a, c · Rosenbach Y.a, c · Hartman C.a, c · Morgenstern S.b, c · Shamir R.a, c
aInstitute of Gastroenterology, Nutrition and Liver Diseases, Schneider Children’s Medical Center of Israel, and bPathology Department, Rabin Medical Center, Petach Tikva, and cSackler Faculty of Medicine, Tel-Aviv University, Tel Aviv, Israel Digestion 2011;83:283–287 (DOI:10.1159/000320714)

Abstract

Background: Celiac disease (CD) is a prevalent condition with a broad spectrum of presentations requiring a lifelong gluten-free diet (GFD). Our aims were to examine the presentation and adherence to a GFD as well as the adequacy of follow-up of children diagnosed with CD at a tertiary referral center. Methods: A retrospective electronic chart review of pediatric patients suspected of CD (n = 581) who were seen at our institute between January 1999 and December 2008 was performed. Results: 387 children were diagnosed with CD (F/M ratio of 1.54, median age: 6.25 years). Presenting symptoms were iron deficiency anemia (n = 82, 34%), short stature (n = 59, 24.5%) and abdominal pain (n = 59, 24.5%). In 63 patients (16.3%) an associated autoimmune disease was recorded. Only 42.7% of the patients (165/387) had regular out-patient gastroenterologist visits; 22% (86/387) were followed by their primary care physician. Over 35% (136/387) were completely lost to follow-up. Negative serology on follow-up was present in 91% of the CD patients(150/165) followed at our center in comparison to 70% (60/86) in those followed up by their primary physician (p = 0.0002). Conclusions: At least in our referral center, follow-up of children diagnosed with CD is far from satisfactory. Initiatives aimed at improving adherence to regular follow-up are needed as this intervention is associated with a significant increase in patient compliance with a long-term GFD.

 

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