Journal Mobile Options
Table of Contents
Vol. 18, No. 2, 2004
Issue release date: August 2004
Cerebrovasc Dis 2004;18:145–153

Impact and Influences on Caregiver Outcomes at One Year Post-Stroke

Smith L.N. · Norrie J. · Kerr S.M. · Lawrence I.M. · Langhorne P. · Lees K.R.
aNursing & Midwifery School, University of Glasgow, Glasgow; bHealth Services Research Unit, Aberdeen Trials Service, Aberdeen; cSchool of Nursing, Midwifery & Community Health, and dNMAHP Research Unit, Glasgow Caledonian University; eAcademic Section of Geriatric Medicine, and fUniversity Department of Medicine & Therapeutics, University of Glasgow, Glasgow, UK

Individual Users: Register with Karger Login Information

Please create your User ID & Password

Contact Information

I have read the Karger Terms and Conditions and agree.

To view the fulltext, please log in

To view the pdf, please log in


Background and Purpose: Four outcome measures of carer stress and coping at one year post-stroke were identified: carer general health, anxiety, depression and perception of stress. Methods: Each outcome was assessed using valid and reliable instruments. In addition, we collected demographic data from both carers and patients which could reasonably be expected to influence carer stress and coping (e.g. age, deprivation levels) as well as information specific to the caring role. Results: Carers were found to be more anxious than previously reported. Neither satisfaction with caring nor the adoption of helpful coping strategies were associated with positive carer outcomes but, nevertheless, carers were not reluctant to care. The SF-36 is a useful predictor of carer stress, in particular the vitality score. Conclusions: Patient data are not sufficient to predict carer general health at one year. At one year, both patients and carers are more anxious than depressed. And there may be a group of patients and carers who can be characterised as borderline anxious and/or depressed and who warrant specific attention to prevent carer burnout.

Copyright / Drug Dosage

Copyright: All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying, recording, microcopying, or by any information storage and retrieval system, without permission in writing from the publisher or, in the case of photocopying, direct payment of a specified fee to the Copyright Clearance Center.
Drug Dosage: The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in goverment regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any changes in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
Disclaimer: The statements, opinions and data contained in this publication are solely those of the individual authors and contributors and not of the publishers and the editor(s). The appearance of advertisements or/and product references in the publication is not a warranty, endorsement, or approval of the products or services advertised or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements.


  1. Dewey HM, Thrift AG, Mihalopoulos C, Carter R, Macdonell R, McNeil JJ, Donnan GA: Informal care for stroke survivors: Results from the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2002;33:1028–1033.
  2. Van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B: Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil 2001;15:669–677.
  3. Dennis M, O’Rourke S, Lewis S, Sharpe M, Warlow C: A quantitative study of the emotional outcome of people caring for stroke survivors. Stroke 1998;29:1867–1872.
  4. Han B, Haley WE: Family caregiving for patients with stroke. Stroke 1999;30:1478–1485.
  5. Hackett M, Vandal AC, Anderson C, Rubenach S: Long-term outcome in stroke patients and caregivers following accelerated hospital discharge and home-based rehabilitation. Stroke 2002;33:643–645.
  6. Bugge C, Alexander H, Hagen S: Stroke patients’ informal caregivers. Stroke 1999;30:1517–1523.
  7. WHO: Annual Health Statistics. Geneva, WHO, 1990.
  8. McLoone P: Carstairs scores for Scottish postcode sectors from the 1991 census. Glasgow, Public Health Research Unit, University of Glasgow, 1997.
  9. Duncan PW, Jorgensen HS, Wade DT: Outcome measures in acute stroke trials: A systematic review and some recommendations to improve practice. Stroke 2000;31:1429–1438.
  10. Hsieh CL, Hsueh IP: A cross-validation of the comprehensive assessment of activities of daily living after stroke. Scand J Rehabil Med 1999;31:83–88.
  11. Wade DT: Measurement in Neurological Rehabilitation. Oxford, Oxford Medical Publishers, 1992.
  12. Zigmond AS, Snaith RP: The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361–370.
  13. Nolan M, Keady J, Grant G: Assessing the needs of family carers: A Guide for Practitioners. London, Pavilion, 1998.
  14. Ware J, Snow K, Kosinski M: The SF-36 Health Survey: Manual and Interpretation Guide. Lincoln: Quality Metric Incorporated, 2000.
  15. Nolan M, Keady J, Grant G: CAMI: A basis for assessment and support with family carers. Br J Nurs 1995;4:822–826.
  16. Lazarus RS: Psychological Stress and the Coping Process. New York, MacGraw-Hill, 1966.
  17. Taylor R, Ford G, Dunbar M: The effects of caring on health: A community-based longitudinal study. Soc Sci Med 1995;40:1407–1415.

Pay-per-View Options
Direct payment This item at the regular price: USD 38.00
Payment from account With a Karger Pay-per-View account (down payment USD 150) you profit from a special rate for this and other single items.
This item at the discounted price: USD 26.50