Practitioners' Perspectives on Quality of Life in Aphasia Rehabilitation in DenmarkCruice M.a · Isaksen J.b · Randrup-Jensen L.c · Eggers Viberg M.b, c · ten Kate O.a
aDivision of Language and Communication Science, School of Health Sciences, City University London, London, UK; bDepartment of Language and Communication, University of Southern Denmark, Odense, and cDepartment of Nordic Studies and Linguistics, University of Copenhagen, Copenhagen, Denmark
Do you have an account?
- Rent for 48h to view
- Buy Cloud Access for unlimited viewing via different devices
- Synchronizing in the ReadCube Cloud
- Printing and saving restrictions apply
Rental: USD 8.50
Cloud: USD 20.00
Objective: This study reports on Danish speech and language therapists' knowledge and understanding of quality of life (QoL) in aphasia, including therapists' views on education and training in relation to preparedness for working on QoL, use of measures, and barriers to applying QoL in practice. Methods: Fourteen Danish clinicians completed a 48-item online questionnaire regarding their views, perspectives and practices that included multiple-choice questions, rating scales, and boxes permitting free text responses. Descriptive statistics were used to characterize the numerical data, and content analysis was applied to text responses. Results: The clinicians interpreted QoL as subjective well-being and participation and explored it with most clients and relatives using informal methods, primarily conversation, for the purposes of identifying relevant goals to direct treatment. Clinicians perceived a need for greater theoretical, practical, and experiential knowledge regarding QoL. They also identified a need for translated QoL instruments and training in these measures in practice. Conclusion: Despite a reported lack of knowledge about and tools for measuring QoL, Danish clinicians are applying QoL issues in their practice and perceive these issues as valuable and important in assessment and therapy. The findings have clear implications for tool development and workforce education.
© 2016 S. Karger AG, Basel
McKevitt C: An Anthropological Investigation of Lay and Professional Meanings of Quality of Life. ESRC Full Research Report, L480254010. Swindon, ESRC, 2005.
- McKevitt C, et al: Defining and using quality of life: a survey of health care professionals. Clin Rehabil 2003;17:865-870.
Intercollegiate Stroke Working Party: National Clinical Guidelines for Stroke. London, Royal College of Physicians, 2012.
Taylor-Goh S: RCSLT - Clinical Guidelines. London, Speechmark Publishing Ltd, 2005.
- Cruice M, et al: Finding a focus for quality of life with aphasia: social and emotional health, and psychological well-being. Aphasiology 2003;17:333-353.
- Visser-Meily A, et al: Spouses' quality of life 1 year after stroke: prediction at the start of clinical rehabilitation. Cerebrovasc Dis 2005;20:443-448.
American Speech and Hearing Association: Scope of Practice in Speech-Language Pathology (Scope of Practice). 2007. http://www.asha.org/uploadedFiles/SP2007-00283.pdf (accessed November 20, 2015).
Code C: Significant landmarks in the history of aphasia and its therapy; in Papathanasiou I, Coppens P, Potagas C (eds): Aphasia and Related Neurogenic Communication Disorders. Burlington, Jones & Bartlett Learning, 2013, pp 3-22.
Worrall L, Papathanasiou I, Sherratt S: Therapy approaches to aphasia; in Papathanasiou I, Coppens P, Potagas C (eds): Aphasia and Related Neurogenic Communication Disorders. Burlington, Jones & Bartlett Learning, 2013, pp 93-112.
- LPAA Project Group: Life participation approach to aphasia: A statement of values for the future. ASHA Leader 2000;5:4-6.
- Kagan A, et al: Counting what counts: a framework for capturing real-life outcomes of aphasia intervention. Aphasiology 2008;22:258-280.
World Health Organization: ICF: International Classification of Functioning, Disability and Health. Geneva, World Health Organization, 2001.
- Verna A, Davidson B, Rose T: Speech-language pathology services for people with aphasia: a survey of current practice in Australia. Int J Speech Lang Pathol 2009;11:191-205.
- Rose M, et al: Aphasia rehabilitation in Australia: current practices, challenges and future directions. Int J Speech Lang Pathol 2014;16:169-180.
- Brumfitt S: Psychosocial aspects of aphasia: speech and language therapists' views on professional practice. Disabil Rehabil 2006;28:523-534.
- Zigmond AS, Snaith RP: The Hospital Anxiety And Depression Scale. Acta Psychiatr Scand 1983;67:361-370.
- Sutcliffe L, Lincoln N: The assessment of depression in aphasic stroke patients: the development of the Stroke Aphasic Depression Questionnaire. Clin Rehabil 1998;12:506-513.
Swinburn K, Byng S: The Communication Disability Profile. London, Connect - The Communication Disability Network, 2006.
Brumfitt S, Sheeran P: The Visual Analogue Self-Esteem Scale. Milton Keynes, Speechmark, 2010.
- Gibson R, Purdy SC: How do speech language therapists in New Zealand perceive the psychological impact of communication difficulties? Speech Lang Hear 2014;17:116-122.
- Simmons-Mackie N, Threats TT, Kagan A: Outcome assessment in aphasia: a survey. J Commun Disord 2005;38:1-27.
World Health Organization, World Report on Disability. Geneva, World Health Organization Press, 2011.
Løgstrup KE: The Ethical Demand. Philadelphia, Fortress Press, 1971.
Rogers CR: Client-Centered Therapy, Its Current Practice, Implications, and Theory. The Houghton Mifflin Psychological Series. Boston, Houghton Mifflin, 1951.
Maslow AH: Toward a Psychology of Being. An Insight Book. Princeton, Van Nostrand, 1962.
Undervisningsministeriet, Lov om specialundervisning for voksne, in LOV nr 632 af 16/06/2014 2014. (Ministry of Education, Law on special education for adults.)
Jensen LR, Thyrsted T: Logopædisk genoptræning og rehabilitering af afasiramte personer. Apopleksi: Medlemsblad 2008;20-21. (Logopedic training and rehabilitation of people with aphasia. Apoplexia, member's magazine.)
- Isaksen JK: ‘It really makes good sense': the role of outcome evaluation in aphasia therapy in Denmark. Int J Lang Commun Disord 2014;49:90-99.
Villadsen MH, et al: Vejledning i udredning af afasi. 2006, http://www.tahosy.dk/best%20practice/Vejledning%20udredning%20afasi%20aug%202006.doc (accessed November 8, 2014).
Audiologopædisk Forening. Audiologopædiske materialer til udredning og vurdering - Test og iagttagelsesmaterialer. 2013. http://www.alf.dk/media/Testmaterialer_-_samlet_oversigt.pdf (accessed November 8, 2014).
- Kagan A: Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology 1998;12:816-830.
ten Kate O: Increasing everyday use of wellbeing and health-related quality of life measures. Unpublished MSc dissertation, Division of Language and Communication Science, City University London, 2014.
Johnson B, Christensen L: Educational research. Quantitative, Qualitative, and Mixed Approaches, ed 4. Los Angeles, Sage, 2012.
- Collis J, Bloch S: Survey of UK speech and language therapists' assessment and treatment practices for people with progressive dysarthria. Int J Lang Commun Disord 2012;47:725-737.
Dansk Hovedtraumedatabase.http://www.kea. au.dk/da/Dansk%20Hovedtraumedatabase.html.
- Lomas J, et al: The communicative effectiveness index: development and psychometric evaluation of a functional communication measure for adult aphasia. J Speech Hear Disord 1989;54:113-124.
- Teasdale TW, et al: Subjective experience in brain-injured patients and their close relatives: a European Brain Injury Questionnaire study. Brain Inj 1997;11:543-563.
- Grohn B, et al: The first 3-months post-stroke: what facilitates successfully living with aphasia? Int J Speech Lang Pathol 2012;14:390-400.
- Brown K, et al: Snapshots of success: an insider perspective on living successfully with aphasia. Aphasiology 2010;24:1267-1295.
- Cruice M, et al: Conceptualising quality of life for older people with aphasia. Aphasiology 2010;24:327-347.
- Cruice M, Worrall L, Hickson L: Quality-of-life measurement in speech pathology and audiology. Asia Pac J Speech Lang Hear 2000;5:1-20.
- de Haan R, et al: Measuring quality of life in stroke. Stroke 1993;24:320-327.
- Hammel J, et al: What does participation mean? An insider perspective from people with disabilities. Disabil Rehabil 2008;30:1445-1460.
- Aaronson N, et al: Assessing health status and quality-of-life instruments: attributes and review criteria. Qual Life Res 2002;11:193-205.
World Health Organization, The World Health Organization Quality of Life (WHOQOL). http://www.who.int/mental_health/publications/whoqol/en/ (accessed November 20, 2015).
- Cruice M: The contribution and impact of the International Classification of Functioning, Disability and Health on quality of life in communication disorders. Int J Speech Lang Pathol 2008;10:38-49.
- Barnard RA, Cruice MN, Playford ED: Strategies used in the pursuit of achievability during goal setting in rehabilitation. Qual Health Res 2010;20:239-250.
- Levack WM, et al: Purposes and mechanisms of goal planning in rehabilitation: the need for a critical distinction. Disabil Rehabil 2006;28:741-749.
- Glassel A, et al: Validation of the extended ICF core set for stroke from the patient perspective using focus groups. Disabil Rehabil 2012;34:157-166.
Article / Publication Details
Copyright / Drug Dosage / DisclaimerCopyright: All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying, recording, microcopying, or by any information storage and retrieval system, without permission in writing from the publisher.
Drug Dosage: The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in government regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any changes in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
Disclaimer: The statements, opinions and data contained in this publication are solely those of the individual authors and contributors and not of the publishers and the editor(s). The appearance of advertisements or/and product references in the publication is not a warranty, endorsement, or approval of the products or services advertised or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements.